AN ASSOCIATION FOR PEOPLE CONCERNED WITH LYMPHOEDEMA: THE BENEFITS OF BELONGING

T. NATASHA POSNER
SIROUS MOMENZADEH


DOI: 10.2190/Y0R5-977Y-KD02-LP1B

Abstract

Lymphoedema is a relatively neglected chronic condition with inadequate treatment provision and significant psychosocial consequences. A membership survey of a self-help organization in Queensland providing information and support and organizing meetings for people concerned with lymphoedema produced evaluative feedback. Comprehensive evidence of the benefits of belonging to the organization was gathered from the responses to a set of open-ended and closed questions. The contribution of this non-government organization to the health and welfare of people with lymphoedema by providing services and representation and facilitating association, is illuminated and affirmed by this evidence.

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