Baywood Publishing Company
1091-2851
1541-4450
International Journal of Self Help and Self Care
BWSH
300316
http://baywood.metapress.com/link.asp?target=journal&id=300316
6
1
1
0
0
0
000006000120120101
Number 1 / 2012
UV10635517JT
http://baywood.metapress.com/link.asp?target=issue&id=UV10635517JT
10.2190/SH.6.1.c
98L1433820801GT0
3
Reframing Dementia in Swedish Self-Help Group Conversations: Constructing Citizenship
9
41
20120123
20120123
20120123
20120123
98L1433820801GT0.pdf
http://baywood.metapress.com/link.asp?target=contribution&id=98L1433820801GT0
1
Linda
Örulv
Center for Dementia Research (CEDER), Department of Medical and Health Sciences, Division of Health and Society, Linköping University, Sweden
This study explores on a micro-level the activity of a self-help group for persons with dementia in Swedish municipal care, based on audio-recordings from 18 months' ethnographic fieldwork. The study focuses on the discursive construction of a shared meaning perspective and its inherent possibilities for liberation. Applying a citizenship perspective, the study approaches people with dementia as vulnerable to marginalization while at the same time capable of agency within the boundaries of their condition. The findings paint a complex picture involving opportunities and limitations of experiential knowledge, issues of double stigmatization, and constructs of being interrelated with other people and with the surrounding society. In the center is the overarching struggle of retaining citizenship in the face of the evolving disease.
dementia
citizenship
self-help groups
mutual support
meaning perspective
experiential knowledge
discourse
Sweden
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